Welcome

Welcome to the International Mefloquine Veterans’ Alliance website.

The International Mefloquine Veterans’ Alliance is a network of veterans, families and friends affected by the health impacts of the neurotoxic drugs – mefloquine (trade name Lariam) and tafenoquine.

The aim of this website is to provide information and support for those dealing with the complex and debilitating health impacts of mefloquine and tafenoquine toxicity.

Our current objectives are to:

• Raise awareness of mefloquine and tafenoquine, their impacts on the health of veterans, serving military personnel, their families and friends.

• Advocate for the provision of proper health care for veterans and families affected by mefloquine and tafenoquine toxicity, including the development of clinical guidelines for diagnosis & management, and comprehensive rehabilitation programs.

• Provide outreach and support for veterans and families affected by mefloquine and tafenoquine neurotoxicity.

• Advocate for the banning of mefloquine use in military forces worldwide.

• Prevent the introduction of tafenoquine in military forces worldwide.

We are speaking up and taking a stand as serving military personnel and ex-serving veterans because we do not accept the unjust, unethical and/or unlawful treatment of our fellow veterans and their families.

Please support our fight for the truth.

Mefloquine Neurotoxicity and Acquired Brain Injury

Mefloquine is an antimalarial drug that has been widely used by military forces around the world since the late 1980s and remains in use to this day. The drug has been found to be neurotoxic, able to cause a variety neurological and psychiatric disorders. Many military personnel and veterans now experience chronic, debilitating health problems as a result of lasting or permanent brain injury caused by mefloquine.

Dr Remington Nevin, Presentation to the U.S. Food and Drug Administration on Mefloquine Neurotoxicity, 11 January 2013

Negligence, Abuse and Cover-up

Despite mefloquine having been found conclusively to be neurotoxic a decade ago, institutional denials by military officials, veterans’ affairs agencies, the ethically compromised medical establishment, the pharmaceutical industry and their lobbyists, have resulted in a situation whereby there is no support for veterans and their families experiencing the debilitating, chronic health effects of mefloquine toxicity. Until recently, these men and women who have sacrificed so much for their countries have suffered in silence. In addition to the usual stigma surrounding mental health many mefloquine veterans have for years, and in some cases decades, endured chronic symptoms of brain injury without acknowledgement or proper care, the result of systematic medical negligence. Misdiagnosis with post-traumatic stress disorder, traumatic brain injury, personality disorders and other illnesses has been common, leading to inappropriate and sometimes dangerous medical treatments. Many have suicided, while those who have shown the courage to speak out have met a wall of denials, threats and abuse. Evidence has now emerged of decades-old corruption and cover-ups involving senior officials in several countries.

Taking a Stand

As serving military personnel and ex-serving veterans, we are meeting the moral obligation placed upon us by our military leaders to stand up for what is right. We do not accept the unjust, unethical and/or unlawful treatment of our fellow veterans. We do not accept negligence, lack of acknowledgement or the failure to properly care for mefloquine veterans and their families. We do not accept the abuse of those who were injured in the service of their countries. We do not accept the rampant corruption of public institutions by Roche, GlaxoSmithKline and the pharmaceutical industry in general, or the culture of impunity among military leaders that has led to this state of affairs. We will continue to show the moral courage required to win this fight. And we will prevail. Please connect with us or join us.

Courage and Leadership

Major General Alastair Duncan

Major General Alastair Duncan, CBE DSO (ret’d)

We are inspired by the courage and leadership of Major General Alastair Duncan. See his story here.

17 Responses to Welcome

  1. David says:

    We wil need to start sending this link personally via e mail,messenger etc

    Liked by 2 people

  2. Don McDonald says:

    i know I will be sending this link to the many people I know who share our disease.

    Liked by 2 people

  3. CharlesW Burns says:

    Is it possible to find.out if and when I received this medication. I was in the first gulf war and trceived a shot of something that all they said ” you will need it”.

    Liked by 1 person

  4. mefloquineman says:

    Love this website!

    Liked by 1 person

  5. Dave Bona says:

    All I have to say is wow……
    Canadian vet of the first gulf war, Somalia and Rwanda. Been on mefloquine for all three deployments, court martialed and kicked out after fourteen years of service with no help. Diagnosed with PTSD after I was released, this would explain a lot……
    OK actually quite pissed off now.

    Liked by 1 person

    • Thanks for your comment Dave. We have a number of mefloquine veterans in Canada who are lobbying the government to provide the necessary health care and family support. Please feel free to contact John Dowe (details on our contacts page). We’d welcome your involvement.

      Like

    • Dave Bona says:

      OK it’s been a month, turned anger into action.
      Been an extremely difficult month, but it has also been rewarding. By writing a letter relating my experience with mefloquine I have been able to look at it as a whole not just little snippets around trauma incidents.
      Wow it has been incredibly therapeutic, I did not fail as a soldier. I was extremely ill, I was let down by our health services.
      I never quite, tried to fight to the bitter end.
      I never felt since my release from military that I could wear a maroon beret to remembrance day services, I did not deserve that privilege…… I had worked so hard to earn that right.
      This year I am going to wear my beret and hold my head high.

      Liked by 2 people

      • Dave, you are to be commended for courageously sharing your story in order to help the many thousands of other affected veterans all over the world. Wear your beret with pride. You served your country well and you are now continuing that service with distinction.

        Liked by 2 people

      • lariamsite says:

        Hi Dave I’ve just read your story mate and to be honest my jaw just hit the floor!!!
        I’m ex 3 Para British army joined 1990 left 94
        In 92 was on a live firing exercise in Kenya trialled lariam over the six weeks we were there! I remember having the same seizures you described flashing brightly coloured triangles and then black out for only seconds but really thought on both accasions that I was on my way over to the dark side!!! At the time I was told it was the heat! However the first one I had was first thing in the morning when it was cool!!! You described exactly what had happened to me which is why I’m in shock!! Anyway fast forward 22 years of on and off hell anxiety depression pain in my liver area and no doctor really taking me seriously as all my vitals are good! I finally think I know what is going on!!!!!! Lariam

        Liked by 2 people

  6. I invite all of you to join the Facebook group called Fluoroquinolone Toxicity Group. We are survivors (some don’t) of having been ‘floxed’ by fluoroquinolone antibiotics such as Levaquin, Cipro and Avelox. Sounds like we have a lot in common.

    Liked by 2 people

  7. Bev Skwernuik says:

    Dave…I have always felt that KNOWLEDGE and UNDERSTANDING of what really happened to many soldiers is KEY to rehabilitation and recovery. I am a Canadian citizen (John knows me) who has followed the story of mefloquine since 1998 when I took about 7 pills. I was APPALLED that military organizations around the world, including Canada, and ESPECIALLY Canada, once learning the details about the mefloquine trials in Somalia, have taken so very long, to make a statement and acknowledge the NEGLIGENCE perpetuated in the care of our brave men and women. One of the early stories I had read about with another mefloquine victim was the story of an American mountain climber who suffered a severely disabling climbing incident on a trip to Asia. It was years later, after suffering and slowly recovering from years of mental and cognitive disabilites that seemed to APPEAR out of no where, did he finally connect the dots and learn about the mefloquine toxicity part of his trip. Only THEN did he find genuine relief and understanding of how he, as such a healthy and fit young man, suddenly “lost his mind” and many years of his life. He then found a peace and understanding of what went so terribly wrong, on that fateful climbing trip that turned his world upside down. I is my hope and my abition, to see that many of our soldiers and veterans can experience the same revelation and understanding that helps them on a PROPER and SUCCESSFUL road to recovery.

    Liked by 1 person

  8. Simon kidd says:

    Hi I believe I trialled this drug in 1992 Kenya served in 3 Para from 90-94 after taking the drug I had a couple of funny turns fainting seeing flashing lights! Was put down to the heat!! I remember severe insomnia but no other real symptoms! On leaving the army 94 two years after taking the drug the nightmare started! Generally feeling poorly every anxiety symptom you can think off metallic taste in mouth and so on and one constant in all of this is a pain or ache in my right side!! Fast forward 22 years the symptoms come and go like the wind! Can have symptoms for months then over night gone! Bloody been hell!!! Seen dozens of doctors with no real help of explanation as they just didn’t know what was wrong with me! Let me tell you there’s nothing more degrading than walking in to your doctors for help and knowing there thinking what’s wrong with you this time!! 22 years I’ve had of this crap and it’s only now I’m starting to replies that this could be lariam!!! Mod you’ve got a lot of explains to do 😡

    Liked by 2 people

    • Dave Bona says:

      Thank you for your response, yes it has been a long road. Yes the shame you feel walking out of a doctor’s office knowing they think you are making things up can be quite unbearable. Would some times send me off in to depression. You just get to the point were you stop discussing it with doctors.
      You suffer in silence.
      What you have is an acquired brain injury due to mefloquine toxicity. There you go a label, I needed a label to help me come to terms with it.
      Be aware that in North America there has been an incredible amount of money spent on athletes developing treatments for acquired brain injuries. As demonstrated by the Loretta neurofeedback I have completed, startling results with mood management.
      So there is hope.

      Liked by 1 person

  9. Innes McDonald says:

    I have followed the comments and symptons and have quite a lot of checks in the boxes
    I am a naval vet of somalia and the first gulf who was on the malaria pills and had the injections
    My symptons started after deployment in somalia and have been diagnosed and pensionned off after 22 yrs service( 2008)
    My questions are simple is there a treatment
    Can i get my life back after over twenty yrs of suffering
    I have been given anti depressants and psychologist but they seem temporary
    Who can i contact in Canada for more information

    Liked by 1 person

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